duchennemusculardystrophy Tag Posts Index

Accessible Playground Review 2 - A Much Better Option

This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp

Accessible Playground Review Number 2 - We Were Duped

This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible

2025 Goals - Review Playgrounds for Accessibility

My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible

Before We Received the Diagnosis

This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf

Awareness Raising Walk 2024

A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise

Resilience - A (Very) Short Story

Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week, went to the

You Can’t Stop

As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish

Blindsided… A Bit

Cough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne muscular dystrophy (DMD). Due to

Birthday Trip

Outside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just in passing, what he thought he’d

Save Our Sons and Walk For Duchenne

This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking

The Eye of the Beholder

One of the problems with being human is that we don't always see eye to eye. In the process of living life, we forget that we're not living in isolation and that,

Whatever You Have To Do, Find An Excuse To Win

Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should

Coming soon

Launching 15.02.2024 ▶️ 3Speak

The Invisibility from Disability

A lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to just think and ponder, but

Good Grief - Learning About The Stages of Grief

Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief.

Good Grief - An Introduction

I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever

Anyone Esle Got Kids Who've Needed Infusions?

Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular destrophy, this can easily lead to breakages. For

Life's Crucible

A few weeks ago my daughter came home from school with a worksheet that contained basic shapes such as a circle, rectangle, square and other shapes that were age

10,372 - Part Three

This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372

10, 372 - Part Two

This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount