dmd Tag Posts Index

Accessible Playground Review 2 - A Much Better Option

This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp

Accessible Playground Review Number 2 - We Were Duped

This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible

Playground Review - Inclusive or Not? Review 1

If you've followed my account at all, you'll know that I'm all about helping people to understand Duchenne muscular dystrophy, a rare genetic condition that my son

2025 Goals - Review Playgrounds for Accessibility

My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible

Before We Received the Diagnosis

This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf

Awareness Raising Walk 2024

A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise

Resilience - A (Very) Short Story

Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week, went to the

You Can’t Stop

As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish

Because I Can

🌟 Join Me in Making a Difference! 🌟 That’s right! You haven’t watched wrong! I’m going to be walking 79km on the 7th of September with the intention of raising

Because I Can...

A couple of posts ago, I wrote about my son's recent school camp and how it was noticeably more difficult for him this year, than last year. As I concluded that

Blindsided… A Bit

Cough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne muscular dystrophy (DMD). Due to

Birthday Trip

Outside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just in passing, what he thought he’d

Often Unsure

One of the many problems with a muscle-wasting condition is that you can't always see the regression happening. Kind of like how your hair grows, it happens slowly

I Don't Think We Can Be Friends

When dealing with a condition such as Duchenne muscular dystrophy, where muscles regress, it's really important that you look beyond the here and now, and plan with

I'm Not Sure I Can

I wrote a week ago about my son's upcoming camp and how I hope, despite his condition, that he enjoys it as much as I used to enjoy school camps. You can read that

Everything Is Different

I remember school camps as exciting events. A chance to let your hair down and escape the confines of overbearing parents and jump straight into the proverbial arms

Save Our Sons and Walk For Duchenne

This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking

The Eye of the Beholder

One of the problems with being human is that we don't always see eye to eye. In the process of living life, we forget that we're not living in isolation and that,

Whatever You Have To Do, Find An Excuse To Win

Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should

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