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Hi from spoonie!

nicole.lolytte

Published: 12 Jul 2025 › Updated: 12 Jul 2025Hi from spoonie!

Hi from spoonie!

Hello everyone from a fellow spoonie!
I am based in NSW Australia… there are a few things that make me a spoonie.
Firstly, i suffer from a rare one in a million genetic syndrome, called tricho-hepato-enteric syndrome. This was caused by me having a faulty gene from each of my parents. It affects my stomach the most, and when in a flare now… think of the worst stomach bug/bout of gastroenteritis you have ever had, then times your symptoms by 10. I am obe of the lucky ones where it does not affect my liver and my latest tests show my immune system is fine, dispits being in a flare.
I alsl suffer from mild asthma, and have well-controlled mental health issues.

Are there any orher groups/topics/communities around chronic illness on here i can join? I am very new to all this.

My business of selling knit and crochet items with reiki was partly also inspired by my genetic syndrome as it promotes healing.

linktree.com/nikkishealinggifts

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Nikkis Healing gifts sells handmade knit and crochet items for babies, children, animals and women. All items also charged with reiki

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